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need help now? call our 24/7 helpline 01983 292 405 [email protected] menu about brainstrust our story what we do how we are different how we are funded our team work with us contact us close brain tumour support navigating your pathway patient guides who’s in my team? brain tumour hub symptoms & diagnosis anatomy & tumour types treatment information surgery molecular analysis therapies close clinical trials end of life care grief & bereavement quality of life practical help travelling money matters access to work resources glossary close living well with a brain tumour exercise & rest be less alone epilepsy scanxiety acceptance mindfulness counselling / hypnotherapy fatigue survivorship close taking control second opinions working effectively with your team peer support peer support volunteers close little brainstrust resources downloads & resources our partners patient stories our campaigns tissue donation raising awareness quality of life clinical research meetups close get involved events fundraising volunteering set up a fund fundraising forms and resources close shop news donate menu about brainstrust our story what we do how we are different how we are funded our team work with us contact us close brain tumour support navigating your pathway patient guides who’s in my team? brain tumour hub symptoms & diagnosis anatomy & tumour types treatment information surgery molecular analysis therapies close clinical trials end of life care grief & bereavement quality of life practical help travelling money matters access to work resources glossary close living well with a brain tumour exercise & rest be less alone epilepsy scanxiety acceptance mindfulness counselling / hypnotherapy fatigue survivorship close taking control second opinions working effectively with your team peer support peer support volunteers close little brainstrust resources downloads & resources our partners patient stories our campaigns tissue donation raising awareness quality of life clinical research meetups close get involved events fundraising volunteering set up a fund fundraising forms and resources close shop news donate we’re here to help you live life with a brain tumour get help about brainstrust read more brain tumour support get help get involved support our work lucy’s story five years ago i was diagnosed with a glioblastoma multiforme; a type of brain tumour that is uncommon among young people… read lucy’s story opt-in or miss out! don’t miss out on the latest brain tumour support resources, news and updates, and be the first to hear about the ways that you can support our life-changing work. find out more shop online with brainstrust shop now support brainstrust by donating here find out how brainstrust’s impact this year our vision is for everyone with a brain tumour to feel less afraid, less alone and more in control. in the last year your support has helped: 734 new people access coaching via our 24/7 helpline 380 people receive a brain box (our support tool kit) 300 people attend a meet up 30,000 people use brainstrust’s nhs accredited online information and support 1900 members of our online community helping each other to feel less alone, less afraid and more in control. “this note is to say ‘diolch o galon’ (thanks from our hearts). we are so proud of you – you don’t know us yet we lean on you, you have no obligation to help us but you do, and every time we feel down, you inspire us to keep on fighting.” – brain tumour carer, wales. news ‘children and young people with cancer coalition’ launched today to improve treatment and care may 30, 2018 dcvax brain tumour immunotherapy: the facts may 30, 2018 lisa, poppy and oscar’s lark rise bike ride for brain tumour support may 21, 2018 brain tumour survivors ian, dan, graydon and richard took on hadrian’s wall for brain tumour support. may 8, 2018 new, routinely accessible brain tumour data to help people understand the impact of the disease. april 30, 2018 stay in touch address brainstrust 4 yvery court castle road cowes isle of wight po31 7qg email [email protected] for help and support [email protected] telephone 01983 292 405 get help in your area sign up to our newsletter © 2018 brainstrust | contact us | sitemap | privacy registered with the charity commission for england and wales as charity no. 1114634 and with the office of the scottish charity regulator as charity no. sc044642 up to date brain tumour data brain tumour data may influence the decisions you make about your care. data also helps you understand the bigger picture, or landscape, in which you find yourself. brain tumour data and statistics influence the focus, and work of organisations like brainstrust. the information helps us to understand the scale and impact of the problems we are setting out to solve. this tool helps you understand the landscape in which you find yourself having been diagnosed with a brain tumour. this landscape can be particularly tricky to navigate as there are many different types of brain tumour, all of which have a different impact. the information you see represents the most up-to-date, official, population level brain tumour data available for england. over time we will be adding to the brain tumour data available and publishing reports, with recommendations, as a result of what we learn from this data. the data behind this content has come from public health england’s national cancer registration and analysis service (ncras) and is a direct result of the ‘get data out’ project. this project provides anonymised population level brain tumour data for public use in the form of standard output tables, accessible here: http://cancerdata.nhs.uk/standardoutput × if you need help using, or understanding this tool, or want help on living life with a brain tumour, then please feel free to call brainstrust on 01983 292 305, or email [email protected] × chart instructions the brain tumour data dashboard lets you explore up -to-date, population level data about the brain tumours diagnosed in england between 2013 and 2015. using the tool you can select different groups of patients to view in the charts below. in these charts the number of patients for every 100 diagnoses is displayed as images of people. patients have been grouped by date of diagnosis, type of tumour, age, gender, and region in england. for each group of patients you can explore the different routes to diagnosis, the proportion of those who received chemotherapy, the proportion who received radiotherapy, as well as the survival of the patients within the group. for more information about what these metrics mean, please see the descriptions below. there are two dashboards in this tool so that you can compare different groups of patients side by side. the tool is best used on a laptop or tablet rather than mobile phone. to use the interactive chart to select a group of patients and explore different metrics: select the year of diagnosis by moving the slider from left to right. select your filters of interest from the four drop down lists in the following order: site diagnosed age at diagnosis region of england sex of patient repeat for the second dashboard to select a comparison group if desired both charts will refresh accordingly with each selection. please note that data for some groups of patients is not available because there are not enough patients within these groups for data to be released safely following guidelines from public health england. chart descriptions routes to diagnosis under the ‘routes to diagnosis’ tab, you can explore the ways patients have been diagnosed with brain cancers. there are many ways, or routes, for cancers to be diagnosed in the nhs. a ‘route to diagnosis’ is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. the routes include: two week wait patients are urgently referred by their gp for suspected cancer via the

URL analysis for brainstrust.org.uk

http://brainstrust.org.uk/brain-tumour-support/quality-of-life/living-well-with-a-brain-tumour/fatigue/
http://brainstrust.org.uk/brain-tumour-support/resources/our-partners/
http://brainstrust.org.uk/brain-tumour-support/quality-of-life/living-well-with-a-brain-tumour/exercise/
http://brainstrust.org.uk/brain-tumour-support/quality-of-life/practical-help/
http://brainstrust.org.uk/about-brainstrust/contact-us/#area
http://brainstrust.org.uk/brain-tumour-support/navigating-your-pathway/treatment-information/therapies/
http://brainstrust.org.uk/brain-tumour-support/quality-of-life/taking-control/peer-support/
http://brainstrust.org.uk/brain-tumour-support/quality-of-life/living-well-with-a-brain-tumour/survivorship/
http://brainstrust.org.uk/brain-tumour-support/navigating-your-pathway/grief-bereavement/
http://brainstrust.org.uk/about-brainstrust/contact-us/
http://brainstrust.org.uk/get-involved/fundraising-forms-and-resources/
http://brainstrust.org.uk/brain-tumour-support/navigating-your-pathway/clinical-trials/
http://brainstrust.org.uk//mailto:[email protected]
http://brainstrust.org.uk/brain-tumour-support/our-campaigns/
http://brainstrust.org.uk/brain-tumour-support/quality-of-life/living-well-with-a-brain-tumour/mindfulness/
cancerdata.nhs.uk

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Error for "brainstrust.org.uk".

the WHOIS query quota for 2600:3c03:0000:0000:f03c:91ff:feae:779d has been exceeded
and will be replenished in 245 seconds

WHOIS lookup made at 17:43:22 07-Jul-2017

--
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Copyright Nominet UK 1996 - 2017.

You may not access the .uk WHOIS or use any data from it except as permitted
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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS brainstrust.org.uk

  PORT 43

  TYPE domain

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

DOMAIN

  NAME brainstrust.org.uk

NSERVER

  NS2.NS-ARIEL.COM 212.53.86.12

  NS1.NS-ARIEL.COM 212.53.86.11

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